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Table of Contents

• ↓ What we do
• ↓ Our long-standing projects
• ↓ SWAN UK
• ↓ Rare Disease UK
• ↓ Our member organisations
• ↓ Donate
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Official Contact & Profiles

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"Genetic Alliance UK is an alliance of over 220 charities and support groups working together to improve the lives of people in the UK with genetic, rare and undiagnosed conditions."

"We run Rare Disease UK which provides a united voice for the rare disease community and raises awareness each year by leading on Rare Disease Day. We also run SWAN UK, which supports children, young people and families affected by undiagnosed genetic conditions and raises awareness each year by leading on Undiagnosed Children's Day."

"SWAN UK is the only dedicated support network in the UK for families affected by a syndrome without a name - a genetic condition so rare it often remains undiagnosed."

"Rare Disease UK is a long-standing and pioneering national campaign by Genetic Alliance UK that represents and unites everyone in the rare disease community."

Key Topics & Focus Areas for geneticalliance.org.uk:

What we do

Our long-standing projects

SWAN UK

Rare Disease UK

Our member organisations

Donate